Well, that depends on who “they” are. First, it should always be a team including you & your child making this decision. The fancy label for that is person-centered planning where the need and goals of the individual determine the plan. No one size fits all. The rest of the team will be the serviceContinue reading “How do they decide how many attendant hours my kid needs?”
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And if there was a problem, yo, I’ll solve it
Or at least I will try! Over the years, I would learn things as a case manager or a special needs mom that seemed like really good new that people did not know… So I did my best to get the information out! 2008, I started by creating Texas Medicaid Waivers Explained and dumping everythingContinue reading “And if there was a problem, yo, I’ll solve it”
Guardianship – Why or why not?
Before you read this, stop and ask yourself what are you trying to achieve by having a guardian appointed for your adult child with special needs? (I would love to read your answers. If you want to share, click here.) Guardianship is a legal proceeding where a medical professional tells a judge that an individualContinue reading “Guardianship – Why or why not?”
To SSI or not to SSI? That is the question!
Recently, I’ve been observing some parents of “high functioning” individuals with intellectual disabilities delay the application for Social Security SSI (Supplemental Security Income). I think this is a mistake. I’m assuming they figure “we can always do it later”. But that’s not exactly true. Social Security manages multiple systems and those systems don’t always playContinue reading “To SSI or not to SSI? That is the question!”
Why are so many people getting two-thirds of the maximum SSI amount?
One of the most common solutions I’m asked to share is how to get Social Security to pay for full SSI amount to an individual. Most often, the issue is very straight forward. And it all depends on how the employee at Social Security asks the questions during the initial SSI application interview. Of course,Continue reading “Why are so many people getting two-thirds of the maximum SSI amount?”
Should we be giving our input to the Intellectual & Developmental Disability System Redesign Advisory Committee (IDD SRAC)?
Background For 4 years, Texas government has had a committee working on redesigning the services for Texans with IDD… while proceeding down the path to Medicaid managed care. (Read the document creating the IDD-SRACommittee and setting their priorities.) Prior to 2015, Medicaid acute care and Long-Term care services (Waivers & ICFs) were managed by TexasContinue reading “Should we be giving our input to the Intellectual & Developmental Disability System Redesign Advisory Committee (IDD SRAC)?”